This whitepaper was commissioned to investigate the current situation of rare diseases in Malaysia. Due to the perceived rarity of such conditions, the rare disease community was often marginalized, and the lack of a holistic policy on rare diseases impacted how these diseases were managed. These developments resulted in early mortality and severe morbidity, including the learning and physical handicapping of patients with rare diseases. In short, rare diseases remain under diagnosed, underfunded and face many unmet needs Although some steps were taken to address these issues, including the provision of funding for drugs for selected conditions over the last few years, more needs to be done to match the pace of how these diseases are managed in regional countries and global rare disease community to ensure equity in healthcare. Through extensive consultations with various stakeholders and surveys of patient groups and their families, this whitepaper addresses key areas that need to be reviewed to improve not only the healthcare mechanism but also social, ethical, legal and financial management as well as the governance framework for Rare Disease (RD).
This Report Card provides details as well as presents a comprehensive analysis of every promise included in the assessment. “Deep Dives” are areas and promises selected by IDEAS which will be analysed in a more in-depth manner. Therefore, we have selected three areas for our “deep dive” to shed more light of the issues in the Malaysia Agreement 1963, Sabah and Sarawak.
However, to ease these concerns, government must shoulder the responsibility of continuing to focus on Malaysia’s longer-term socio-economic development while ensuring a mature political culture. Furthermore, a clear communication strategy must be adopted to keep Malaysians well informed of the government’s agenda. Sustaining public support is crucial for the PH government to remain on track in keeping its promises in the next four years.
Date: November 2019
Food security is related to how a society can control food accessibility, availability, utilization and stability (FAO, 2009). Many countries increasingly rely on food importation to supply their deficit in production to fulfil the growing domestic food demand, which is often implemented through State Trading Enterprises (STEs). Despite the prevalence of STEs in Southeast Asia, relatively little work has been devoted to try and identify the consequences of these centralised food trading entities in achieving food security objectives. Therefore, it is necessary to assess on a country case basis in order to understand the specific successes and failures of STEs in achieving food security.
As the staple food of most Southeast Asian peoples, rice is an especially important commodity in the region. In the process of transitioning from food self-sufficiency to food security, many of these countries have utilised STEs to conduct food trading as well as to achieve some agricultural policy objectives. The STEs in Malaysia and Indonesia, BERNAS and BULOG respectively, have been selected for analysis due to their similarity as being instrumental entities holding state-mandated monopoly power over the trade of the nation’s staple food.
Date: October 2019
As part of the API, IDEAS consider the strategic economic relationship between ASEAN and the European Union (EU). The comparison is often made between these two regional blocs, which represent the two leading efforts to integrate their respective regions. The EU’s economic integration is significantly deeper and supported by a far more developed institutional and legal framework. The EU is in general more economically developed than ASEAN and is also more homogeneous in its level of development across its Member States than is the case across the 10 members of ASEAN. Despite these differences, we believe that ASEAN and the EU share an essential similarity: they are both groupings of countries that recognise the importance of regional integration and the benefits of openness to trade and investment in the context of a rules-based system. We therefore believe that putting the economic relations between the EU and ASEAN on the best possible footing is an important step in ensuring the long-term prosperity of ASEAN.
In our 2018 EU-ASEAN Free Trade Agreement (FTA) Report we discussed the prospects for a FTA between the EU and ASEAN. The report concluded that the prospects for a comprehensive FTA are currently low, due to a range of issues. Among those issues was the ongoing dispute over palm oil, between the EU on the one hand and Indonesia and Malaysia on the other. Therefore, in this report we decided to further investigate this dispute, with objective of setting out the issues clearly for stakeholders on both sides to provide a common basis of understanding.